Our goal is to raise
$250k for treatment and a cure.

$0
72%
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We’re refreshing this page! New content will be live soon — thank you for your patience. This past year has brought many challenges after losing Claire, but we’re ready to continue and move forward with renewed purpose.

Love from Mark and Terri

Batten Disease is an utterly devastating condition, yet it is widely unheard of… and we want to change that. You will meet our family, learn more about the condition, you will also be able to find out all of the different ways you can help us.

Thank you visiting and we hope you are inspired to join us and be part of our journey.

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We are always grateful to everyone who shares our story and helps raise awareness for Battens Disease. We want to ensure that other families affected have a place to turn for support and know that there is resources available to them.

If you think you may have be able to help us in any way please contact us here.

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